NICU New York

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ADA Center

        1 – State Agencies
State: New York
Northeast ADA Center Employment and Disability Institute 201 Dolgen Hall Cornell University Ithaca , NY , 14853
(607) 255-6686 (V/TTY/Spanish)
(800) 949-4232 (V/TTY/Spanish)
http://www.northeastada.org

Assistive Technology

        1 – State Agencies
State: New York
NYS Justice Center 161 Delaware Ave Delmar , NY , 12054
(800) 624-4143 (V/TTY/Spanish)
(518) 549-0358
http://www.justicecenter.ny.gov/assistive-technology-traid

Blind/ Visual Impairments/ Deaf-Blind

        1 – State Agencies
State: New York
NYS Commission for the Blind Office of Children and Family Services 52 Washington Street Rensselaer , NY , 12144-2796
(518) 474-6812
(866) 871-3000 (V)
(866) 871-6000 (TTY)
http://www.ocfs.state.ny.us/main/cbvh/

CHIP

        1 – State Agencies
State: New York
(healthcare for low-income uninsured children) Child Health Plus NYS Health Department Box 2000 Albany , NY , 12220
(800) 698-4543
(877) 898-5849 (TTY)
http://www.health.ny.gov/health_care/child_health_plus/index.htm

D D Council

        1 – State Agencies
State: New York
NYS Developmental Disabilities Planning Council 99 Washington Avenue 12th Floor, Ste 1230 Albany , NY , 12210
(518) 486-7505
(800) 395-3372
http://ddpc.ny.gov

Deaf/Hard of Hearing

        1 – State Agencies
State: New York
NYS Education Department P-12: Office of Special Education Disability Specific Assistance 89 Washington Avenue Room 309 EB Albany , NY , 12234
(315) 337-8400
http://www.p12.nysed.gov/specialed/specifics.html

Developmental Disabilities

1 – State Agencies
State: New York
NYS Office for People with Developmental Disabilities 44 Holland Avenue Albany , NY , 12229
(866)-946-9733 (V)
(866) 933-4889 (TTY)
http://www.opwdd.ny.gov/

Early Intervention

        1 – State Agencies
State: New York
Bureau of Early Intervention NYS Department of Health Corning Tower, Room 287 Empire State Plaza Albany , NY , 12237-0660
(518) 473-7016
(800) 522-5006 (“Growing Up Healthy” 24-Hour Hotline)
(800) 577-2229 (in NYC)
http://www.health.ny.gov/community/infants_children/early_intervention/

Mediation

        1 – State Agencies
State: New York
New York State Education Department P-12: Office of Special Education Due Process Unit 89 Washington Avenue, Room 309 EB Albany , NY , 12234
(518) 473-0170
http://www.p12.nysed.gov/specialed/techassist/mediation.htm

Mental Health

        1 – State Agencies
State: New York
NYS Office of Mental Health 44 Holland Avenue Albany , NY , 12229
(518) 474-4403
(800) 597-8481
http://www.omh.ny.gov/

Mental Health – Youth

        1 – State Agencies
State: New York
Children’s Services NYS Office of Mental Health 44 Holland Avenue Albany , NY , 12229
(518) 473-6328
(800) 597-8481
http://www.omh.ny.gov/omhweb/Childservice/

Preschool, Disabilities

        1 – State Agencies
State: New York
New York State Education Department P-12: Office of Special Education Preschool Unit 89 Washington Avenue, Room 309 EB Albany , NY , 12234
(518) 473-6108
http://www.p12.nysed.gov/specialed/

Protection & Advocacy

        1 – State Agencies
State: New York
Disability Rights New York 5 Clinton Square, 3rd FL Albany , NY , 12207
(518) 432-7861
http://www.disability-advocates.org

Relay Services

        1 – State Agencies
State: New York
(800) 421-1220 (V); 711 (V)
(800) 662-1220 (TTY); 711 (TTY)
(877) 662-4234; 711 (Speech to Speech)
http://www.nyrelay.com/

Special Education

        1 – State Agencies
State: New York
New York State Education Department P-12: Office of Special Education Special Education Services 89 Washington Avenue, Room 309 EB Albany , NY , 12234
(518) 402-3353
http://www.p12.nysed.gov/specialed/

Special Format Books for Children and Youth Ages 3-19

        1 – State Agencies
State: New York
(Serving upstate New York) NYS Talking Book and Braille Library Cultural Education Center 222 Madison Avenue Albany , NY , 12230
(518) 474-5935
(800) 342-3688
http://www.nysl.nysed.gov/tbbl/

Special Format Books for Children and Youth Ages 3-19

        1 – State Agencies
State: New York
(Serving New York City and Long Island) Andrew Heiskell Braille and Talking Book Library 40 West 20th Street New York , NY , 10011
(212) 206-5400
http://www.nypl.org/locations/heiskell

Special Health Care Needs

        1 – State Agencies
State: New York
Children with Special Health Care Needs Program New York State Department of Health ESP-Corning Tower Building, Room 213 Albany , NY , 12237-0619
(518) 474-2001
http://www.health.state.ny.us/community/special_needs

State Web Site

        1 – State Agencies
State: New York
Connect with your state’s official website to find all manner of state agencies and information, including how to contact your governor and/or your representatives in the Senate and House:
http://www.ny.gov/

Transition Services

        1 – State Agencies
State: New York
New York State Education Department P-12: Office of Special Education Special Education Policy, Transition Services 89 Washington Ave., Room 309 EB Albany , NY , 12234
(518) 402-3353
http://www.p12.nysed.gov/specialed/transition/home.html

UCEDD

        1 – State Agencies
State: New York
Westchester Institute for Human Development University Center for Excellence in Developmental Disabilities in affiliation with New York Medical College Cedarwood Hall Valhalla , NY , 10595-1689
(914) 493-8204
(914) 493-1204 (TTY)
http://www.wihd.org

UCEDD

        1 – State Agencies
State: New York
Rose F. Kennedy University Center for Excellence in Developmental Disabilities Education, Research, and Service Albert Einstein College of Medicine 1410 Pelham Parkway South Yeshiva University Bronx , NY , 10461
(718) 430-8524
http://www.aecom.yu.edu

UCEDD

        1 – State Agencies
State: New York
Strong Center for Developmental Disabilities University of Rochester Golisano Children’s Hospital at Strong 601 Elmwood Avenue, Box 671 Rochester , NY , 14642
(585) 275-0355
 http://www.urmc.rochester.edu/childrens-hospital/developmental-disabilities/scdd.aspx

Vocational Rehabilitation

        1 – State Agencies
State: New York
New York State Education Department Adult Career and Continuing Education Services, Vocational Rehabilitation One Commerce Plaza, Room 1609 Albany , NY , 12234
(800) 222-5627
http://www.acces.nysed.gov/vr/

Attention Deficit Disorder

        2 – Disability-Specific Organizations
State: New York
To identify an ADD group in your state or locality, contact either:  Children and Adults with Attention-Deficit/Hyperactivity Disorder (CHADD) 8181 Professional Place, Suite 150 Landover , MD , 20785
(301) 306-7070
(800) 233-4050
http://www.chadd.org

Attention Deficit Disorder

        2 – Disability-Specific Organizations
State: New York
Attention Deficit Disorder Association (ADDA) P.O. Box 7557 Wilmington , DE , 19803-9997
(800) 939-1019 (V/Fax)
http://www.add.org

Autism

        2 – Disability-Specific Organizations
State: New York
Autism Society of Albany 101 State Street Schenectady , NY , 12305
(518) 355-2191
http://www.albanyautism.org

Autism

        2 – Disability-Specific Organizations
State: New York
Autism Society of Manhattan 370 East 76th Street #C1208 New York , NY , 10021-2558
(212) 628-0669

Autism

        2 – Disability-Specific Organizations
State: New York
Autism Society of Western New York 19 Limestone Drive, Suite 1 Buffalo , NY , 14221-7091
(716) 633-2275
http://www.autismwny.org/

Autism

        2 – Disability-Specific Organizations
State: New York
Center for Autism and Related Disabilities 1535 Western Avenue Albany , NY , 12203
(518) 442-2574
(518) 442-2574
http://www.albany.edu/psy/autism/ autism.html

Blind/Visual Impairments

        2 – Disability-Specific Organizations
State: New York
American Foundation for the Blind Information Center 11 Penn Plaza, Suite 300 New York , NY , 10001
(212) 502-7600
(800) 232-5463
http://www.afb.org

Brain Injury

        2 – Disability-Specific Organizations
State: New York
Brain Injury Association of New York State 10 Colvin Avenue Albany , NY , 12206
(518) 459-7911
(800) 228-8201 (in NY)
(800) 444-6443 (in NY)
http://www.bianys.org

Cerebral Palsy

        2 – Disability-Specific Organizations
State: New York
Central Office and Metropolitan Services, Cerebral Palsy of NYS, Inc. 330 W. 34th Street, 15th Floor New York , NY , 10001
(212) 947-5770
http://www.cpofnys.org/

Epilepsy

        2 – Disability-Specific Organizations
State: New York
Epilepsy Foundation of Long Island 506 Stewart Avenue Garden City , NY , 11530
(516) 739-7733
http://efli.org/

Intellectual & Developmental Disabilities

        2 – Disability-Specific Organizations
State: New York
NYSARC, Inc. 393 Delaware Avenue Delmar , NY , 12054
(518) 439-8311
http://www.nysarc.org

Learning Disabilities

        2 – Disability-Specific Organizations
State: New York
Learning Disabilities Association of NYS 1190 Troy-Schenectady Rd. Latham , NY , 12110
(518) 608-8992
http://www.ldanys.org/

Mental Health

        2 – Disability-Specific Organizations
State: New York
Mental Health Association in NYS 194 Washington Avenue, Suite 415 Albany , NY , 12210
(518) 434-0439
http://www.mhanys.org

Mental Health

        2 – Disability-Specific Organizations
State: New York
NAMI New York State 99 Pine Street, Suite 302 Albany , NY , 12207
(518) 462-2000
http://www.naminys.org

Mental Health

        2 – Disability-Specific Organizations
State: New York
Families Together in New York State, Inc. 737 Madison Avenue Albany , NY , 12208
(518) 432-0333
(888) 326-8644 (in NY)
http://www.ftnys.org

Speech, Language, and Hearing

        2 – Disability-Specific Organizations
State: New York
NYS Speech-Language-Hearing Association, Inc. 930 Albany Shaker Rd. Latham , NY , 12110
(518) 786-0947
(800) 697-7542
http://www.nysslha.org

Spina Bifida

        2 – Disability-Specific Organizations
State: New York
Spina Bifida Association of Northeastern New York 123 Saratoga Road Scotia , NY , 12302
(518) 399-9151
http:// www.sbaneny.org

Tourette Syndrome

        2 – Disability-Specific Organizations
State: New York
Long Island Chapter
(516) 876-6947
http://www.li-tsa.org

Tourette Syndrome

        2 – Disability-Specific Organizations
State: New York
Greater Rochester Chapter
(585) 987-5196
http://www.touretterochester.org

Tourette Syndrome

        2 – Disability-Specific Organizations
State: New York
New York City Chapter
(646) 202-9683
http://www.tsa-nyc.org

Tourette Syndrome

        2 – Disability-Specific Organizations
State: New York
Hudson Valley Chapter
(914) 378-5025
http://www.tsa-nyhv.org

Tourette Syndrome

        2 – Disability-Specific Organizations
State: New York
Greater New York State Chapter
(716) 839-4430
http://www.tsa-gnys.org

Community Parent Resource Center

        3 – Organizations for Parents
State: New York
Parent Network of WNY 1000 Main St. Buffalo , NY , 14202
(866) 277-4762
(716) 332-4170
http://parentnetworkwny.org/

Community Parent Resource Center

        3 – Organizations for Parents
State: New York
United We Stand of New York 98 Moore St Brooklyn , NY , 11206
(718) 302-4313/4314
http://www.uwsofny.org/

Other Parent Organization

        3 – Organizations for Parents
State: New York
Early Childhood Direction Centers Office of Vocational and Educational Services for Individuals with Disabilities (VESID) One Commerce Plaza, Room 1623 99 Washington Avenue Albany , NY , 12234
(518) 486-7462
http://www.vesid.nysed.gov

Other Parent Organization

        3 – Organizations for Parents
State: New York
(Serving Otsego, Chenango, Delaware, Broome, Tioga, and Tompkins counties) The Family Resource Network, Inc 46 Oneida Street Oneonta , NY , 13820
(607) 432-0001
(800) 305-8814
http://www.familyrn.org

Parent Teacher Association (PTA)

        3 – Organizations for Parents
State: New York
New York State Congress of Parents and Teachers, Inc. One Wembley Court Albany , NY , 12205-3830
(518) 452-8808
(877) 5NYSPTA
http://www.nyspta.org

Parent Training and Information Center (PTI)

        3 – Organizations for Parents
State: New York
The Advocacy Center 590 South Avenue Rochester , NY , 14620
(585) 546-1700
(800) 650-4967 (in NY)
http://www.advocacycenter.com

Parent Training and Information Center (PTI)

        3 – Organizations for Parents
State: New York
Advocates for Children of New York (New York City) 151 W. 30th Street, 5th Floor New York , NY , 10001
(212) 947-9779
(866) 427-6033
http://www.advocatesforchildren.org

Parent Training and Information Center (PTI)

        3 – Organizations for Parents
State: New York
Resources for Children with Special Needs, Inc. 116 E. 16th Street, 5th Floor New York , NY , 10003
(212) 677-4650
http://www.resourcesnyc.org

Parent Training and Information Center (PTI)

        3 – Organizations for Parents
State: New York
Sinergia/Metropolitan Parent Center 2082 Lexington Ave. 4th Floor New York , NY , 10035
(212) 643-2840
(866) 867-9665
http://www.sinergiany.org

Parent-to-Parent

        3 – Organizations for Parents
State: New York
Parent to Parent of NYS P.O. Box 1296 Tupper Lake , NY , 12986
(518) 359-3006
(866) 727-6970
http://www.parenttoparentnys.org

Partners in Policymaking

        3 – Organizations for Parents
State: New York
New York State Partners in Policymaking 590 South Avenue Rochester , NY , 14620
(585) 546-1700, ext. 234
http://www.advocacycenter.com

Independent Living

        4 – Other Disability Organizations
State: New York
To find out the contact information for the Statewide Independent Living Council (SILC) in your state, contact: Independent Living Research Utilization Project The Institute for Rehabilitation and Research 2323 South Sheppard, Suite 1000 Houston , TX , 77019
(713) 520-0232 (V);
(713) 520-5136 (TTY)
http://www.ilru.org

Independent Living

        4 – Other Disability Organizations
State: New York
To find out the contact information for centers for independent living (CILs) in your state, contact: National Council on Independent Living 1710 Rhode Island Avenue, NW, 5th Floor Washington , DC , 20036
(202) 207-0334 (V)
(202) 207-0340 (TTY)
http://www.ncil.org

Other

        4 – Other Disability Organizations
State: New York
Easter Seals New York 29 W. 36th Street, 4th Floor, Room 404 New York , NY , 10018
(518) 244-6053
(800) 727-8785 (in NY)
http://www.ny.easter-seals.org

Other

        4 – Other Disability Organizations
State: New York
Family Empowerment Council, Inc. 225 Dolson Avenue, Suite 403 Middletown , NY , 10940
(845) 343-8100
http://www.familyempowerment.org

Other

        4 – Other Disability Organizations
State: New York
MENTOR ABI Group – New Jersey Rehabilitative and Support Services for Persons with Acquired Brain Injury 2000 Crawford Place, Suite 700 Mt. Laurel , NJ , 08054
(856) 235-5505
http://www.mentorabi.com/welcome.aspx

Other

        4 – Other Disability Organizations
State: New York
New York State Occupational Therapy Association 119 Washington Avenue, 2nd Floor Albany , NY , 12210
(518) 462-3717
http://www.nysota.org

Other

        4 – Other Disability Organizations
State: New York
VSA arts of New York City 18-05 215 Street, Suite 15N Bayside , NY , 11360
(718) 225-6305 (V/TTY)

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BIRTH & BEREAVEMENT QUOTES
«    14 of 16    »

She was a genius of sadness, immersing herself in it, separating its numerous strands, appreciating its subtle nuances. She was a prism through which sadness could be divided into its infinite spectrum.

— Jonathan Safran Foer, Everything Is Illuminated

No one ever told me that grief felt so like fear.

— C.S. Lewis, A Grief Observed

I am strong.

— January, founder of Birth Without Fear

When someone you love dies, and you’re not expecting it, you don’t lose her all at once; you lose her in pieces over a long time—the way the mail stops coming, and her scent fades from the pillows and even from the clothes in her closet and drawers. Gradually, you accumulate the parts of her that are gone. Just when the day comes—when there’s a particular missing part that overwhelms you with the feeling that she’s gone, forever—there comes another day, and another specifically missing part.

— John Irving, A Prayer for Owen Meany

They say time heals all wounds, but that presumes the source of the grief is finite.

— Cassandra Clare, Clockwork Prince
«    14 of 16    »


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